Repository DNA Samples to be Sequenced and Data Returned to ACP to Accelerate MS Research thanks to support from Regeneron Genetics Center to analyze all 3,200 ACP Repository DNA samples.Ī small pilot DNA collection was done among a few select iConquerMS members, but substantial funding is needed to offer this option to all members. ĪCP Repository News and Potential Linkage of Repository and iConquerMS Data The Accelerated Cure Project for MS began over a decade ago, with a repository for DNA samples of people with multiple sclerosis. You can read a full report of the Summit in the ACP Newsletter. Great ideas for transformational collaborations were identified in the context of shared understanding of the needs, priorities and capabilities of different MS stakeholders. This year’s Summit was received unrestricted support from Biogen, EMD Serono, and Genentech/Roche. Leadership Summit focuses on Transformational Collaborationsįor the fourth year, people with MS and their support partners, health care providers, researchers, representatives from industry and academia and members of the iConquerMS governance gathered in Boston to identify next steps in the network’s development. Italian MS Society: A First Step to Harmonize Collection and Use of Patient-Reported Outcomes across Cultures.RealTalk MS, a Leading Patient-Centered MS Research Podcast, Collaborates with iConquerMS.Collaboration with EMD Serono brings the “Voice” of People with MS to Drug Development.National MS Society Supports iConquerMS Infrastructure/Operations for Mutual Goals.Key collaboration partners making headlines for 2018 include: Funding from these projects supports project specific activities, general operations and enhancements to the portal. These collaborations provide visibility and resources for the sustainability of iConquerMS. In the US and worldwide, iConquerMS™ is viewed as a reliable and valuable partner. REAL MS – Research Engagement About Life with MS, iConquerMS longitudinal studyĬollaborations are the Key to our Impact and Sustainability PCORI – People Centered Outcomes Research Institute NMSS – National Multiple Sclerosis Society ISPOR – International Society of Pharmacoeconomics Outcomes Research (US and EU Conferences) The Timeline of 2018 Activities for iConquerMSĪAN – American Academy of Neurology Annual MeetingĪCTRIMS – Americas Committee for Treatment and Research in Multiple Sclerosis Annual MeetingĬMSC – Consortium of MS Centers Annual meetingĭIA – Drug Information Association Annual MeetingĮCTRIMS – European Committee for Treatment and Research in Multiple Sclerosis Annual Meeting We want to share a few of the highlights from 2018. Your enthusiasm and participation made 2018 a very exciting year for iConquerMS™ and Accelerated Cure Project (ACP), and a great springboard for our 2019 activities.
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